Post by Admin/ Traveler on Apr 4, 2019 17:35:32 GMT
The Post-Lyme Disease Treatment Syndrome (PTLDS) a review of its origin and its consequences in the socio-economic sphere.
This article is long and very detailed, but very interesting. I would encourage you to take a look at it, but rather than trying to understand it all (like I said, it's long), this seems to be a pretty good write up/summary of the article by Joanne Drayson:
The Post-Lyme Disease Treatment Syndrome (PTLDS) a review of its origin and its consequences in the socio-economic sphere
"Abstract
In the 90s patients treated for Lyme disease, caused by the bite’s tick, which transmit the spirochete Borrelia burgdorferi began to show a set of signs and symptoms that started months after concluded the treatment; they began to reported by various scientists around the world and called Post Treatment Lyme Disease Syndrome (PTLDS), mainly characterized by cognitive deterioration, recurring headaches, fatigue, memory problems, musculoskeletal pain and many others.
For some individuals the syndrome is clinically evident, while for others it has a psychosomatic element. In this research we will make a chronological description of post-Lyme syndrome, when it appeared, its symptoms and if it really deserves to be recognized by the World Health Organization (WHO) in the new ICD-11 codes. In addition to this aspect, clarify the meaning of this term and scope in medical and non medical practice. We will propose a management regimen for Lyme disease that could eliminate this bacterium that is causing so much deterioration in the affected population worldwide.
Main Objective
Make a chronological description of the Post Treatment Lyme Disease Syndrome (PTLDS) from its beginnings to the present, its clinical characteristics in all affected age groups regardless of sex, age, race and nationalities.
Secondary Objectives
Determine if Post Lyme Syndrome is a scientific reality that should be:
Considered within the new ICD-11 codes (International Classification of Diseases year 2018). ?
They are cognitive symptoms after the treatment of Lyme disease?
It’s a term clearly defined?
Lead to new alternative treatments for Lyme disease that would mainly cover the second, third and sequel of the disease.
Methods
The methods to used include analysis of all the databases and articles published in this regard, both for or against Lyme disease post treatment syndrome (PTLDS), using the National Library of Medicine of the USA. (Pubmed, Medline). Scientific and technical literature on Health in Latin America and the Caribbean (LILACS), and Europe (SCOPUS, EMBASE); make a chronological description of the post-treatment syndrome of Lyme disease from the first time it was mentioned in the scientific literature to the present day, highlighting the most relevant.
The objective was to determine if this syndrome is a clinical reality, a psychosomatic disease, or a spectrum of conditions needing better defining. In addition to that, we will explain why this term is causing so much controversy today, and we will propose a new treatment regimen that should be considered by the world health authorities for the treatment of Lyme disease.
In the chronology of Post-Treatment Lyme Disease Syndrome (PTLDS) we will highlight the most relevant ones in the timeline, describing the term first, by the health authorities, and by the scientists concerned in the study of these clinical manifestations.
Conclusion
It is demonstrated that the chronic symptoms of Lyme disease are a reality, referred to as:
Chronic Lyme disease (CLD); or
Syndrome- Post-treatment of Lyme disease (PTLDS).
As we said at the beginning, the CDC does not recognize the term Chronic Lyme Disease (CLD) because it is confusing[1].
With respect to this, we conclude that the CDC is wrong because data demonstrated that months or years after adequate treatments with antibiotics, patients can have the same or worse symptoms, which gives truth to the term: chronic Lyme disease (CLD).
On the other hand, the CDC alleges that the term Post-treatment of Lyme disease syndrome (PTLDS) is used by some scientists to define symptoms after the treatment of the disease and that it is due to “unknown cause”:
With regard to this aspect, the "so called” Post-treatment of Lyme disease syndrome (PTLDS), is the same chronic Lyme disease, consisting of:
Lyme positive patients who were never treated.
Positive Lyme patients who after treatment in acute phase relapsed months or years later, and reached the secondary or late stage with symptoms equal or more severe than at the beginning.
Patients who were misdiagnosed due to lack of effective diagnostic tests and reached the chronic stage. Today the CDC recognizes that its diagnostic tests are not 100% effective.
Well-diagnosed Lyme patients who never responded to the treatments recommended by the CDC.
We also disagree with the CDC about the definition of "unknown cause" when most studies and research show that it is a chronic encephalopathy produced by Borrelia burgdorferi, either by:
Its persistence in the bloodstream, cerebrospinal fluid and tissues due to resistance to treatment, under the well-known mechanism of "Biofilm".
Generation of neurological damage due to the persistence of Borrelia burgdorferi in tissues that do not regenerate, such as the nerve cells.
An inflammatory process that remained in the nervous system and tissues after eliminating the causative agent.
In some patients, the coexistence of other diseases such as Erlichiosis, Babesiosis and Bartonellosis, which worsen the symptoms and obstruct the treatment.
We find with an unprotected society, the reality is that thousands of patients are discarded as positive Lyme after 4 months of treatment, because the treatment guidelines of the CDC say that in that time or less you will be cured, which we prove is false in a good proportion of patients.
In 2019 May, is the limit for the recognition of ICD-11 Codes of Lyme disease (International classification of diseases), and the WHO refuse to recognize them all, which will cause patients without coverage for their treatments. One of the unrecognized codes is congenital Lyme[46-54] .
The global community of patients with Lyme must organize well and adequately claim from health authorities such as the World Health Organization (WHO) to recognize the entire Lyme codes, and ensure coverage of their treatment at all levels.
The Syndrome post-treatment of Lyme disease (PTLDS), which is nothing more than the ”chronic symptoms” of the disease, is being used perversely to cover the reality of this disease, avoid coverage by health insurance, and tell patients: "you have nothing, go to a psychologist ... when their blood and brain are sailing in a sea of Borrelias."
This article is long and very detailed, but very interesting. I would encourage you to take a look at it, but rather than trying to understand it all (like I said, it's long), this seems to be a pretty good write up/summary of the article by Joanne Drayson:
The Post-Lyme Disease Treatment Syndrome (PTLDS) a review of its origin and its consequences in the socio-economic sphere
"Abstract
In the 90s patients treated for Lyme disease, caused by the bite’s tick, which transmit the spirochete Borrelia burgdorferi began to show a set of signs and symptoms that started months after concluded the treatment; they began to reported by various scientists around the world and called Post Treatment Lyme Disease Syndrome (PTLDS), mainly characterized by cognitive deterioration, recurring headaches, fatigue, memory problems, musculoskeletal pain and many others.
For some individuals the syndrome is clinically evident, while for others it has a psychosomatic element. In this research we will make a chronological description of post-Lyme syndrome, when it appeared, its symptoms and if it really deserves to be recognized by the World Health Organization (WHO) in the new ICD-11 codes. In addition to this aspect, clarify the meaning of this term and scope in medical and non medical practice. We will propose a management regimen for Lyme disease that could eliminate this bacterium that is causing so much deterioration in the affected population worldwide.
Main Objective
Make a chronological description of the Post Treatment Lyme Disease Syndrome (PTLDS) from its beginnings to the present, its clinical characteristics in all affected age groups regardless of sex, age, race and nationalities.
Secondary Objectives
Determine if Post Lyme Syndrome is a scientific reality that should be:
Considered within the new ICD-11 codes (International Classification of Diseases year 2018). ?
They are cognitive symptoms after the treatment of Lyme disease?
It’s a term clearly defined?
Lead to new alternative treatments for Lyme disease that would mainly cover the second, third and sequel of the disease.
Methods
The methods to used include analysis of all the databases and articles published in this regard, both for or against Lyme disease post treatment syndrome (PTLDS), using the National Library of Medicine of the USA. (Pubmed, Medline). Scientific and technical literature on Health in Latin America and the Caribbean (LILACS), and Europe (SCOPUS, EMBASE); make a chronological description of the post-treatment syndrome of Lyme disease from the first time it was mentioned in the scientific literature to the present day, highlighting the most relevant.
The objective was to determine if this syndrome is a clinical reality, a psychosomatic disease, or a spectrum of conditions needing better defining. In addition to that, we will explain why this term is causing so much controversy today, and we will propose a new treatment regimen that should be considered by the world health authorities for the treatment of Lyme disease.
In the chronology of Post-Treatment Lyme Disease Syndrome (PTLDS) we will highlight the most relevant ones in the timeline, describing the term first, by the health authorities, and by the scientists concerned in the study of these clinical manifestations.
Conclusion
It is demonstrated that the chronic symptoms of Lyme disease are a reality, referred to as:
Chronic Lyme disease (CLD); or
Syndrome- Post-treatment of Lyme disease (PTLDS).
As we said at the beginning, the CDC does not recognize the term Chronic Lyme Disease (CLD) because it is confusing[1].
With respect to this, we conclude that the CDC is wrong because data demonstrated that months or years after adequate treatments with antibiotics, patients can have the same or worse symptoms, which gives truth to the term: chronic Lyme disease (CLD).
On the other hand, the CDC alleges that the term Post-treatment of Lyme disease syndrome (PTLDS) is used by some scientists to define symptoms after the treatment of the disease and that it is due to “unknown cause”:
With regard to this aspect, the "so called” Post-treatment of Lyme disease syndrome (PTLDS), is the same chronic Lyme disease, consisting of:
Lyme positive patients who were never treated.
Positive Lyme patients who after treatment in acute phase relapsed months or years later, and reached the secondary or late stage with symptoms equal or more severe than at the beginning.
Patients who were misdiagnosed due to lack of effective diagnostic tests and reached the chronic stage. Today the CDC recognizes that its diagnostic tests are not 100% effective.
Well-diagnosed Lyme patients who never responded to the treatments recommended by the CDC.
We also disagree with the CDC about the definition of "unknown cause" when most studies and research show that it is a chronic encephalopathy produced by Borrelia burgdorferi, either by:
Its persistence in the bloodstream, cerebrospinal fluid and tissues due to resistance to treatment, under the well-known mechanism of "Biofilm".
Generation of neurological damage due to the persistence of Borrelia burgdorferi in tissues that do not regenerate, such as the nerve cells.
An inflammatory process that remained in the nervous system and tissues after eliminating the causative agent.
In some patients, the coexistence of other diseases such as Erlichiosis, Babesiosis and Bartonellosis, which worsen the symptoms and obstruct the treatment.
We find with an unprotected society, the reality is that thousands of patients are discarded as positive Lyme after 4 months of treatment, because the treatment guidelines of the CDC say that in that time or less you will be cured, which we prove is false in a good proportion of patients.
In 2019 May, is the limit for the recognition of ICD-11 Codes of Lyme disease (International classification of diseases), and the WHO refuse to recognize them all, which will cause patients without coverage for their treatments. One of the unrecognized codes is congenital Lyme[46-54] .
The global community of patients with Lyme must organize well and adequately claim from health authorities such as the World Health Organization (WHO) to recognize the entire Lyme codes, and ensure coverage of their treatment at all levels.
The Syndrome post-treatment of Lyme disease (PTLDS), which is nothing more than the ”chronic symptoms” of the disease, is being used perversely to cover the reality of this disease, avoid coverage by health insurance, and tell patients: "you have nothing, go to a psychologist ... when their blood and brain are sailing in a sea of Borrelias."