Post by Admin/ Traveler on Jan 23, 2019 16:54:16 GMT
Internet-based self-diagnosis of Lyme disease caused death in a young woman with systemic lupus erythematosus
While I do agree that not everything is Lyme disease and we must be careful - this "letter" is disgusting!!! And full of LIES. Plain and simple.
"Proper understanding and management of PTLDS..."
Who said that's a REAL diagnosis anyway??? It's HIGHLY disputed - we don't have a syndrome, we have an ongoing infection that ACTUALLY responds to treatments!!!
Yet another LIE:
"The internet encourages patients to ask physicians for serology testing for Lyme disease and to demand further antibiotic treatment. However, there is clear evidence that positive serology does not indicate infection with B.burgdorferi and most importantly, antibiotic therapy for PTLDS is potentially harmful for patients."
Anyone that has had these infections for long, or talked to someone that has, understands that serology testing is NOT going to work for the majority of cases!!!!
So that you can see what I'm ranting about, here is the 'letter' - and my questions would start with - don't they fact check any articles any more, or is it all done by if you are on their "good" list, you can publish whatever comes to mind???
The article in full:
"Letter to the Editor
Internet-based self-diagnosis of Lyme disease caused death in a young woman with systemic lupus erythematosus
Author links open overlay panelZuzanaStrizova1OndrejPatek2Lenka VitovaL.2MiroslavaHorackova2JirinaBartunkova1
Show more
doi.org/10.1016/j.jbspin.2018.12.011Get rights and content
ABSTRACT
In the majority of cases, Lyme disease responds well to antibiotic treatment. Nevertheless, some patients may suffer from chronic nonspecific symptoms such as musculoskeletal pain and fatigue, termed as a post-treatment Lyme disease syndrome (PTLDS).
Proper understanding and management of PTLDS may prevent from the incorrect diagnosis of patients with autoimmune, neuromuscular or other somatic disorders, where identical symptoms are equally prevalent.
We report a 37-year-old female with systemic lupus erythematosus (SLE) who was repeatedly misdiagnosed for a chronic Lyme disease and treated with tetracycline antibiotics before she developed an acute exacerbation of SLE and finally died due to multi-organ failure.
The internet encourages patients to ask physicians for serology testing for Lyme disease and to demand further antibiotic treatment. However, there is clear evidence that positive serology does not indicate infection with B.burgdorferi and most importantly, antibiotic therapy for PTLDS is potentially harmful for patients.
It is crucial to follow the recent guidelines for diagnosis and treatment of Lyme disease and PTLDS to avoid the repetition of antibiotic regimens and misdiagnosing patients."
While I do agree that not everything is Lyme disease and we must be careful - this "letter" is disgusting!!! And full of LIES. Plain and simple.
"Proper understanding and management of PTLDS..."
Who said that's a REAL diagnosis anyway??? It's HIGHLY disputed - we don't have a syndrome, we have an ongoing infection that ACTUALLY responds to treatments!!!
Yet another LIE:
"The internet encourages patients to ask physicians for serology testing for Lyme disease and to demand further antibiotic treatment. However, there is clear evidence that positive serology does not indicate infection with B.burgdorferi and most importantly, antibiotic therapy for PTLDS is potentially harmful for patients."
Anyone that has had these infections for long, or talked to someone that has, understands that serology testing is NOT going to work for the majority of cases!!!!
So that you can see what I'm ranting about, here is the 'letter' - and my questions would start with - don't they fact check any articles any more, or is it all done by if you are on their "good" list, you can publish whatever comes to mind???
The article in full:
"Letter to the Editor
Internet-based self-diagnosis of Lyme disease caused death in a young woman with systemic lupus erythematosus
Author links open overlay panelZuzanaStrizova1OndrejPatek2Lenka VitovaL.2MiroslavaHorackova2JirinaBartunkova1
Show more
doi.org/10.1016/j.jbspin.2018.12.011Get rights and content
ABSTRACT
In the majority of cases, Lyme disease responds well to antibiotic treatment. Nevertheless, some patients may suffer from chronic nonspecific symptoms such as musculoskeletal pain and fatigue, termed as a post-treatment Lyme disease syndrome (PTLDS).
Proper understanding and management of PTLDS may prevent from the incorrect diagnosis of patients with autoimmune, neuromuscular or other somatic disorders, where identical symptoms are equally prevalent.
We report a 37-year-old female with systemic lupus erythematosus (SLE) who was repeatedly misdiagnosed for a chronic Lyme disease and treated with tetracycline antibiotics before she developed an acute exacerbation of SLE and finally died due to multi-organ failure.
The internet encourages patients to ask physicians for serology testing for Lyme disease and to demand further antibiotic treatment. However, there is clear evidence that positive serology does not indicate infection with B.burgdorferi and most importantly, antibiotic therapy for PTLDS is potentially harmful for patients.
It is crucial to follow the recent guidelines for diagnosis and treatment of Lyme disease and PTLDS to avoid the repetition of antibiotic regimens and misdiagnosing patients."