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Post by Little Bear (LB) on Sept 6, 2017 17:49:55 GMT
Hi everyone!-
Just wondering if anyone knows the answer to this question?
What ever happened to the people that were first diagnosed with Lyme disease from Lyme, CT?
Are there any articles or reports of follow-ups on how these people are doing?
Are there some that are still dealing with symptoms? OR are they in remission?
I know that this might be a hard question to find the answer to, but just wondering if anyone has come across any information about these people years later.
Thank You!
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Post by DJ on Sept 6, 2017 18:24:14 GMT
Hi everyone!-
Just wondering if anyone knows the answer to this question?
What ever happened to the people that were first diagnosed with Lyme disease from Lyme, CT?
Are there any articles or reports of follow-ups on how these people are doing?
Are there some that are still dealing with symptoms? OR are they in remission?
I know that this might be a hard question to find the answer to, but just wondering if anyone has come across any information about these people years later.
Thank You!
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Post by DJ on Sept 6, 2017 18:31:06 GMT
Hey Little Bear, That is an excellent ?! Never heard about them in ages! Now you are making me wonder! O boy that's dangerous! Maybe look it up on the net?? Write to that town and ask, or email?? That would be an interesting story to tell! I know what it's been like since 2003 and heard about it in the late 90s. Be interesting know some of their answers?
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Post by Little Bear (LB) on Sept 7, 2017 0:17:41 GMT
Hey Little Bear, That is an excellent ?! Never heard about them in ages! Now you are making me wonder! O boy that's dangerous! Maybe look it up on the net?? Write to that town and ask, or email?? That would be an interesting story to tell! I know what it's been like since 2003 and heard about it in the late 90s. Be interesting know some of their answers? Hi DJ!-
Thank you for your response!
I have tried to look up information about this on the internet, but I am not having any luck on finding any information. When I try a search, I get the typical information about when and where Lyme was first acknowledged. I just can't find anyting about how these people are doing lately.
I wonder if in the 70's they were told to take antibiotic for a month and that they would be cured. And that any symptoms that they had after were due to "post treatment" or that their lingering symptoms were due to the damage that Lyme did in their body.
I also wonder how many of these people have suffered from other disorders years later. Like for example; have any of them now been diagnosed with M.S., Alzheimer's, Parkinson's?
I am also wondering why news reporters never find these people that were the first people to have Lyme? The reporters only comment on how people were affected in Lyme, CT in the 70's; but nobody knows if they are still cured, in remission, or still suffering with symptoms.
Why isn't anyone in Journaling or Healthcare keeping in contact with these people. Wouldn't these be the type of people to help the rest of us with answering our own questions?
DJ- I hope that today was a good day for you!
Thank You!
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Post by Admin/ Traveler on Sept 7, 2017 0:43:58 GMT
I looked around a little bit tonight, Little Bear and didn't find much. It could be because that's medical information that is now protected. I was looking for the names of the mothers that pushed for something to be done/recognize the medical issues with no luck either.
I'll keep looking though, no telling when a person might run across some information that leads to something I'm looking for!
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Post by Little Bear (LB) on Sept 7, 2017 16:45:00 GMT
I looked around a little bit tonight, Little Bear and didn't find much. It could be because that's medical information that is now protected. I was looking for the names of the mothers that pushed for something to be done/recognize the medical issues with no luck either. I'll keep looking though, no telling when a person might run across some information that leads to something I'm looking for! Hi Traveler!-
Please don't worry about finding the answers. I don't know if the answers can be found.
I was just wondering if anyone has come across information about these people while researching other Lyme issues.
Thank You!
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Post by Admin/ Traveler on Sept 7, 2017 19:11:42 GMT
You just may be right about not being able to find the information. If they were doing well, I would think that the IDSA would be shoving those results in our faces all the time, to be perfectly honest. It would support their stand on treatments because they surely wouldn't have received long term abx/treatments back then. Definitely a head scratcher!
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Post by DJ on Sept 8, 2017 15:40:12 GMT
It sure is a head scratchier! I wonder if "we" giggle, could put a letter together to the town mayor? or what ever they have? Put our ideas together, what could they say? nothing, get lost? I am scratching my head too. There for a while that is all they talked about, Lyme Conn. Than it disappear ... like Lab 257 they shut that up too.
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Post by Admin/ Traveler on Sept 8, 2017 18:04:06 GMT
I'm not sure that the current Mayor of that town would even know - if they would even answer. I doubt they like being known as "where Lyme started"! I did finally come across this (written in 2007)- but it's what I suspected. They were evaluated by our "favorite" (deeeeeeep sarcasm!) people - Alan Steere (written as Alien Steere in this post! LMAO!!) Lymenet Europe post
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Post by DJ on Sept 8, 2017 19:39:17 GMT
O that's nice! I read it. Like you said Traveler lose cause on that 1! They already got that story and made it their way! But they aren't complete right, they think in their pea brain they are!
Still say it's all in our heads! figure of speech there!
Shame! O well it was a good thought huh?
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Post by Little Bear (LB) on Sept 9, 2017 3:04:19 GMT
Hi Traveler!-
Thank you for finding this!
I had to reread it a couple of times because of memory issues. Hopefully I understood it correctly.
Ha Ha Ha! "Alien Steere". I also got a giggle from this. What, did he have to fly down in his spaceship to do this study? He He He!!!
"However, patients with facial palsy, who frequently had more widespread nervous system involvement more often had residual facial or peripheral nerve deficits." - This doesn't sound like they are "cured"! They STILL have symptoms!!!
"Moreover, patients with facial palsy who did Not receive antibiotics for acute neuroborreliosis more often now had joint pain and sleep difficulty" -Yeah, Do you think!!! They didn't get treatment right away and let the infection spread!
"Thus, the overall current health status of each patient group was good." -WHAT??? How can they claim that these people have a "good" health status when they still have lingering symptoms! Good health status means that a person DOESN'T have aches and pains.
"58% of the facial palsy group reported memory problems/ 38% of the Lyme arthritis group Now have chronic or episodic knee pain/ 23% of the facial palsy group now has residual deficits of facial nerve function, as determined by physical examination" -Is this still considered "good health"?
In the study, 22% were excluded because they had been lost to follow-up for reasons of death or moving away from the area. -Am I the only one that wants to know what the cause of death was for some of these people? Did any of these people pass away from Lyme Cardiac issues??? Oh, I 'm sure that it was ALL just "natural" deaths. UGH!!!!
" The patients with continuing problems are said to have post-Lyme disease syndrome, not active disease." -How do they know?? Nobody seems to know the answer to this question.
"Current antibody status of these patients: 28% of the EM group are still IgG positive/ 45% of the facial palsy group are still IgG positive/ 63% of the arthritis group is still IgG positive" -WOW! Unbelievable!!!! So, now all of a sudden a positive test with symptoms means NOTHING???
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Post by Admin/ Traveler on Sept 9, 2017 17:19:57 GMT
Yep, I seriously question their ability to judge what constitutes "good" health!! LOL!
It's more proof that the IDSA goons never did understand the scope of the disease, much less how to help people once they were infected!!! But, the article did give some light on how they were doing. Not well, I'd say!!! Seems they got the most minimal treatments and still have ongoing infections - at least at that point in time.
I can still remember when our first Lyme 'vaccine' recipient joined Healingwell and started explaining their symptoms. It was beyond obvious that they now had an active infection!!! They didn't have Lyme to begin with either, they got the vaccine because of the 'promotion' of it, because they had friends that had chronic Lyme and they wanted to avoid it....only to get it from the vaccine.
All of this is thanks to the IDSA/CDC. Funny, I sure don't feel like writing them a thank you letter for all of their help!!!!!
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Post by Little Bear (LB) on Sept 9, 2017 17:55:14 GMT
Yep, I seriously question their ability to judge what constitutes "good" health!! LOL! It's more proof that the IDSA goons never did understand the scope of the disease, much less how to help people once they were infected!!! But, the article did give some light on how they were doing. Not well, I'd say!!! Seems they got the most minimal treatments and still have ongoing infections - at least at that point in time. I can still remember when our first Lyme 'vaccine' recipient joined Healingwell and started explaining their symptoms. It was beyond obvious that they now had an active infection!!! They didn't have Lyme to begin with either, they got the vaccine because of the 'promotion' of it, because they had friends that had chronic Lyme and they wanted to avoid it....only to get it from the vaccine. All of this is thanks to the IDSA/CDC. Funny, I sure don't feel like writing them a thank you letter for all of their help!!!!! Thank you for sharing the story of the person who got Lyme disease through the vaccine. That is absolutely terrible!
I think that the next "Lyme vaccine" they come out with should be tested on ALL the helpful people from IDSA and CDC!
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Post by Admin/ Traveler on Sept 9, 2017 21:16:34 GMT
Yep, I seriously question their ability to judge what constitutes "good" health!! LOL! It's more proof that the IDSA goons never did understand the scope of the disease, much less how to help people once they were infected!!! But, the article did give some light on how they were doing. Not well, I'd say!!! Seems they got the most minimal treatments and still have ongoing infections - at least at that point in time. I can still remember when our first Lyme 'vaccine' recipient joined Healingwell and started explaining their symptoms. It was beyond obvious that they now had an active infection!!! They didn't have Lyme to begin with either, they got the vaccine because of the 'promotion' of it, because they had friends that had chronic Lyme and they wanted to avoid it....only to get it from the vaccine. All of this is thanks to the IDSA/CDC. Funny, I sure don't feel like writing them a thank you letter for all of their help!!!!! Thank you for sharing the story of the person who got Lyme disease through the vaccine. That is absolutely terrible!
I think that the next "Lyme vaccine" they come out with should be tested on ALL the helpful people from IDSA and CDC!
What a GREAT idea!! We can just say, "You first!!!" Bwahahahahaha!!!!!!!
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Post by Randy on Sept 12, 2017 18:34:47 GMT
I know that a couple of them are in some scattered interviews in some docs. I think one lil ol lady is in Under Our Skin, I think, and from what she said she is doing well. Not sure if there is one in Under The 8 Ball.
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Post by Admin/ Traveler on Sept 12, 2017 22:42:11 GMT
Thanks, Randy!! I had forgotten all about that! I haven't seen Under The 8 Ball either, so I don't know about that one.
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Post by Little Bear (LB) on Sept 20, 2017 14:46:50 GMT
I know that a couple of them are in some scattered interviews in some docs. I think one lil ol lady is in Under Our Skin, I think, and from what she said she is doing well. Not sure if there is one in Under The 8 Ball. Hi Randy!-
Thank you for your response!
I have watched Under Our Skin a couple of times. I don't remember too much from the movie. I will have to watch it again. Maybe this time I will remember more! LOL!
I saw the movie Under the 8 Ball also. I don't remember too much from this movie either, except that the ending was extremely sad.
Thank You!
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