|
Post by Little Bear (LB) on Jul 13, 2017 17:59:06 GMT
Hi everybody!-
When I woke up this morning, my right middle finger is sore and swollen. It hurts in the joints when I try to bend it. My right wrist also hurts. I know that it is probably inflammation, but has anyone else had this happen to them?
P.S.- I had this happen several years ago before I knew that I had Lyme. I had it happen to certain fingers and my right calf.
Thank You!
|
|
|
Post by Randy on Jul 13, 2017 21:06:35 GMT
I have had this sorta happen. Not the swelling part but the pain. I have a finger I could not bend properly for yrs and now after doing herbal treatment for 6mo I can fully bend it again without pain.
|
|
|
Post by Admin/ Traveler on Jul 14, 2017 12:14:09 GMT
Unfortunately, I still have this happening to me randomly as well. I would encourage to to find what feels best, heat or ice, and use an anti-inflammatory.
The reason its up to you on the heat or ice a because it all depends on what's really going on in there. It could be arthritic type stuff, which heat would ease the pain, or it could be "just" (Ha!) inflammation, which cold would be better.
|
|
|
Post by Little Bear (LB) on Jul 14, 2017 19:03:26 GMT
I have had this sorta happen. Not the swelling part but the pain. I have a finger I could not bend properly for yrs and now after doing herbal treatment for 6mo I can fully bend it again without pain. Hi Randy!-
Thank You so much for your response!
I am so sorry to hear that you were unable to properly bend your finger for years. That must have been horrible! But I am so happy to hear that you can fully bend it now without pain!
I hope that you continue to gain strength everyday.
As sad as it is, it's somewhat comforting knowing that other people have dealt with some of the same symptoms. It helps me so I don't feel so alone in this horrible disease.
Thank You!
|
|
|
Post by Randy on Jul 14, 2017 19:12:22 GMT
You are very welcome. Yeah it was weird it was actually happening to several fingers but one was worse than the other and now both are fine. However now that Im treating bartonella & myco all my muscles and nerves are just shot and going haywire and way worse than before I started treatment. Its taking its toll on me and Im only 1 month into bart & myco treatment and Im like how much worse can it get ya know.
|
|
|
Post by Little Bear (LB) on Jul 14, 2017 19:26:49 GMT
Unfortunately, I still have this happening to me randomly as well. I would encourage to to find what feels best, heat or ice, and use an anti-inflammatory. The reason its up to you on the heat or ice a because it all depends on what's really going on in there. It could be arthritic type stuff, which heat would ease the pain, or it could be "just" (Ha!) inflammation, which cold would be better. Hi Traveler!-
Thank you for your response!
I am so sorry to hear that this is still happening to you randomly. I have been using Byron White A-Inflam (for inflammation) for over a year now. I take 40 drops a day. Maybe the A-Infalm isn't helping me anymore. UGH!
Thank you for the reminder about heat and ice. I tried heat yesterday. It felt a little better, but my finger is still swollen today. Today, I will try ice and see if this helps. I hope that one or the other helps, because it looks like I have a stuffed sausage attached to my hand! lol!
Thank You!
|
|
|
Post by Little Bear (LB) on Jul 14, 2017 19:51:34 GMT
You are very welcome. Yeah it was weird it was actually happening to several fingers but one was worse than the other and now both are fine. However now that Im treating bartonella & myco all my muscles and nerves are just shot and going haywire and way worse than before I started treatment. Its taking its toll on me and Im only 1 month into bart & myco treatment and Im like how much worse can it get ya know. Hi Randy!-
I'm so sorry to hear about your muscles and nerves.
What symptoms do you have with your muscles?
Currently, I have been dealing with ALL my muscles aching very bad. It feels like someone beat me with a baseball bat everyday.
What symptoms do you have with your nerves?
Currently, I have been dealing with sciatica issues in my right leg. And my right arm feels like I hit my funny bone, but I didn't. Oh, yeah, who could forget about my left upper eyelid that has been twitching off and on daily for the last two months. The eyelid twitching doesn't hurt, but it is soooooooo annoying!
YESSSSSS!! I have asked myself in the past " How much worse can it get".
Sending you many (((HUGS!))))
|
|
|
Post by Randy on Jul 14, 2017 22:37:00 GMT
Thank u. Well I have muscle loss all over upper body. My hands and shoulders are the worst,why I have no clue. Hands shake and fingers twitch as well as upper body twitching. yes eyelid twitches also its right eye. Sciatica in left leg hurts. Plus more comes and goes.
|
|
|
Post by Little Bear (LB) on Jul 15, 2017 0:41:50 GMT
Hi Randy!-
Thank you for sharing your symptoms with me.
I am so sorry to hear about your muscle loss and other symptoms. Lyme, Bart, and Babs can really mess with our bodies.
Magnesium might help you with the muscle twitches.
And, please don't shoot the messenger, but don't forget to detox.
Best Wishes!
|
|
|
Post by Randy on Jul 15, 2017 18:19:53 GMT
I detox daily. Burdock Root,Dandelion Leaf & Root,Epsom soaks & Sauna. Im thinking I may need to add more idk. The odd thing is most of my symptoms including twitching were stopping and lessening for a few weeks and now they are back and I have no clue how or why as I have changed nothing and keep a very strict routine. The only new thing to happen is I moved into a house about 3 weeks ago which oddly is when things were getting better as I went crazy daily unpacking and settling in and now that Ive slowed down symptoms come back.
|
|
|
Post by Admin/ Traveler on Jul 15, 2017 20:54:08 GMT
Randy, have you been tested for the MTHFR mutation? I know that when I added in methyl B-12 and methylfolate, I started detoxing better. When symptoms increase for no known reason, we need to look at the possibility of herxing. You're right in the 'window' of when many people herx, several weeks after starting/changing treatments.
Do pay attention to the 'smells' in your new place - mainly for mold. It may be that there is something in the new place that is causing issues, so watch to see if spending time away from the new place helps ease your symptoms as well consistently (it would only take 3 or 4 times to confirm).
LB, I use turmeric, ginger, and quercetin to help keep my inflammation down.
For my nerve related pain, I've found Lion's mane to be helpful for me - I even have had some feeling come back in my hands and feet!! Of course, the anti-inflammatories help with that as well.
|
|
|
Post by Randy on Jul 15, 2017 21:40:56 GMT
Yes I have both C677t & A1298 one alial only. Supplementing B12 made me feel like cr*p, orally and via a shot and the stupid 23&Me said I have the CBS mutation also but I can eat the hell out of sulfurous foods soooooo yeah. I may have to look at Andro B's instead idk. I do eat a bit of Romain Lettuce which is loaded with B12. The new house doesnt have mold, it was just built. My old apt did have mold though. I take a 2 day break each week and Im noticing I dont feel quit as bad. I use just the chronic tonic, burdock & dandelion.
|
|
|
Post by Little Bear (LB) on Jul 16, 2017 17:52:50 GMT
Hi Randy!-
Did you ever have any tests done for mold in your body?
I was going to get tested about a year ago. It got complicated trying to talk to the lab techs about the tests that my LLMD had ordered for me. The lab techs didn't recognize some of the tests and didn't know how to properly test. They also told me that these specialized tests might cost a lot of money.
So, long story short, I personally never got tested. Yet, there are times that I wonder if I should have.
It is so hard to decide what to spend money on. I always tell my LLMD that I am trying to get better on a budget. LOL!
I want to get better, but I don't want to end up bankrupt!
|
|
|
Post by Little Bear (LB) on Jul 16, 2017 17:55:13 GMT
Hi Traveler!-
Thank you for letting me know what you take for inflammation!
|
|
|
Post by Randy on Jul 16, 2017 22:03:37 GMT
Well...yes sorta been tested for mold. I got muscle testing done at the time I was muscle tested for co infections and it was negative and I dont recall if blood testing for mold was ever done or urine. Soooo idk. I know muscle testing is very debatable. But it was correct so far in regards to Babs and Bart. Dont know about the rmsf and cpn and myco.
|
|
|
Post by Admin/ Traveler on Jul 17, 2017 19:16:56 GMT
Yes I have both C677t & A1298 one alial only. Supplementing B12 made me feel like cr*p, orally and via a shot and the stupid 23&Me said I have the CBS mutation also but I can eat the hell out of sulfurous foods soooooo yeah. I may have to look at Andro B's instead idk. I do eat a bit of Romain Lettuce which is loaded with B12. The new house doesnt have mold, it was just built. My old apt did have mold though. I take a 2 day break each week and Im noticing I dont feel quit as bad. I use just the chronic tonic, burdock & dandelion. Ohhhh, that stuff gets confusing quickly!! Just because you have the mutation, doesn't mean you have the issues that come with it necessarily. It comes down to trial and error yet again. Boy, does that get old quick!!!! For anyone that wants to know what are the different types of B-12, this is a really good article: Global Healing Center - 4 types of B-12
|
|
|
Post by Little Bear (LB) on Jul 19, 2017 19:42:57 GMT
I am homozygous MTHFR A1298C. I think that my mutation is turned on. I personally have very rarely felt any sort of relief from detoxing. Even though I don't get relief, I do continue to detox daily.
Yes!!!!!! The whole gene mutation is very confusing!!! My regular GP doesn't know much about it and neither does my LLMD. And currently with my brain function, I don't understand it either. It is very hard for me to retain any new information.
Traveler was very kind to give me the name and dosage of methyl B12 and Methyl folate that she takes. I have yet to try this!
Thank you Traveler for your link about the different vitamin B12. I didn't know that there were 4 different types.
|
|
|
Post by summer16 on Jul 19, 2017 21:17:05 GMT
Randy, do you think doing all that moving and exhausting yourself set you back a bit? I hate the way these diseases and symptoms come and go. Just when you think you have jumped a hurdle something else pops up. Take care all.
Patty
|
|
|
Post by Admin/ Traveler on Jul 19, 2017 23:42:00 GMT
I am homozygous MTHFR A1298C. I think that my mutation is turned on. I personally have very rarely felt any sort of relief from detoxing. Even though I don't get relief, I do continue to detox daily.
Yes!!!!!! The whole gene mutation is very confusing!!! My regular GP doesn't know much about it and neither does my LLMD. And currently with my brain function, I don't understand it either. It is very hard for me to retain any new information.
Traveler was very kind to give me the name and dosage of methyl B12 and Methyl folate that she takes. I have yet to try this!
Thank you Traveler for your link about the different vitamin B12. I didn't know that there were 4 different types.
LOL! Funny you hadn't seen that yet, LB. It's my favorite B-12 link! Remember to start them at low dose, as they could "open" that detox pathway and you could herx. I did some when I started, even at lower doses.
|
|
|
Post by Randy on Jul 21, 2017 18:47:03 GMT
Summer, No i dont think so. I only exercise just before sauna to sweat more and to make things move in the body. I only jog in place and do jumping jacks for a total of 5-7min. Ive been doing it for about 4mo.
|
|