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Post by acres on Nov 8, 2017 22:48:19 GMT
Hi, My blood tests arrived from the lab....Lyme and co infections negative....He wants to test me again at the end of the month.....I was disappointed in the doc's attitude today towards my proactive behavior and herbs...May have to find a legit llmd.....
Is it easier to find blood test infections if the person is chronic as opposed to being in the acute stage ?
Scott
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Post by casa11 on Nov 8, 2017 23:36:05 GMT
Hi acres, i am no expert, I'm sure others will be along to share their knowledge soon though!
I also don't know your history with these diseases... are you having symptoms? A tick bite? An EM? Etc... Do you suspect Lyme & co or are you trying to prevent it?
Sorry your doctors attitude towards your proactive self treatments was negative! Try not to let him get you down! You know your body & what it needs better than anyone!
What kind of tests did you get?
As I'm sure you know, blood tests for these diseases are notoriously unreliable! I guess if he wants another in a month you could just keep self treating until then ... or you could do the llmd thing...
I think it's just a toss up trying to get a positive test for a recent infection. Think it's even harder when it's gone chronic & begun to mess with the immune system.
But don't take what I'm saying for sure- I'm still fairly new to all this ( as far as diagnosis & treatment, not as far as the infections themselves...) so I'm still learning as I go...
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Post by casa11 on Nov 8, 2017 23:54:00 GMT
Hi acres, I just went back & read some of your previous posts.
So you are experiencing symptoms- sorry ! When you said proactive herbal treatment I was hoping you meant you weren't symptomatic yet!
It's great that you've got an herbalist helping you at least- definitely try not to let your other doctors attitude about herbal treatments get you down... that's just how some doctors are. About Lyme & about herbs!
Well,I still don't have any real info to add to the conversation, sorry. Just wanted to tell you your previous posts answered some of the questions I had asked ...
And say how sorry I am you've gotta deal with this after just recovering from c-diff!
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Post by acres on Nov 9, 2017 0:59:29 GMT
Hi, Thank you so much.... I started my tonic/herbal protocol 2 days ago and I have doubled my coconut oil intake....been reading on HW and various articles it might help....Also cannot hurt in my desire to gain some weight ! I have 3 more anti oxidant iv treatments with this doc.....And since I paid for them I will continue to go...... I will test his attitude and knowledge....I have learned a great deal here and need him to be an asset not a source of stress.... In the meantime I will review other doc's in my area that are Llmd....
My symptoms are : scratchy throat, slightly enlarged neck lymph nodes, irritation from my throat, down through my esophagus into my sternum, around my ribs and upper back. A stiff neck.....A slight headache, pain behind my eyes and constant feeling of exhaustion like I have not slept in several days.... Scott
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Post by Admin/ Traveler on Nov 9, 2017 1:07:45 GMT
Hi Acres, As Casa said, no, it's very difficult to get a positive test result for chronic Lyme in most cases - it took me a year of treatment before I got my fully positive CDC positive test, although I had been infected for 37 years by then too. If you are waiting on a positive test for treatment, there are some things that you may be able to do though. You can try doing some of the things that Dr. Klinghardt has been doing to help his patients that are infected get positive results - one hour of deep tissue massage just before getting a blood draw for Lyme, or using ultra sound just before getting the blood test for Lyme. Or, you can just continue on with the natural treatments. I would ask yourself why you want a positive test - for insurance purposes (so they will help pay for treatments, just remember, they don't pay for natural treatments), because you are having great difficulty believing you have Lyme (hey, it happens), or for reasons like that. I wanted a positive test at first, because I thought it would help me get insurance to pay for treatments - what I didn't know was that by the time I got the positive test, I could no longer tolerate pharma treatments, so I ended up going with natural treatments anyway. When I got reinfected/relapsed, I knew I wasn't going to use pharma and KNEW I had been infected, so I didn't see the point and never got retested. "Dr. Klinghardt starts by sharing why Lyme disease goes undiagnosed in many instances: Lyme is highly compartmentalized. That means it sets up sanctuaries in different body compartments, and chronic Lyme is not living in the blood. Lyme may be in the blood in acute Lyme but not in chronic Lyme. In chronic Lyme it may be in the right hippocampus but not in the entire brain, maybe in the brain stem but not the liver. It may be in your disk of L4-L5 but not in other disks and so on and so forth. It lives in biofilm. We know that. It lives in the cell, but it doesn’t stray." Klinghardt, testing You can also read about the ultra sound to be done just before testing in the above link as well.
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Post by acres on Nov 9, 2017 1:40:28 GMT
Hi, I am not looking for a positive test to treat....I am treating and believe I have lyme...I was curious about the effectiveness of the blood testing for acute vs. chronic....My only doubt is which one I have.... Thank you, Scott
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Post by Little Bear (LB) on Nov 9, 2017 17:47:34 GMT
Hi, I am not looking for a positive test to treat....I am treating and believe I have lyme...I was curious about the effectiveness of the blood testing for acute vs. chronic....My only doubt is which one I have.... Thank you, Scott Hi acres!-
I am sorry, but I don't think that there is a test that can prove if someone with Lyme is acute or chronic. All you can do is start treating the infection and see how you react to the treatment.
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Post by casa11 on Nov 9, 2017 18:12:47 GMT
I think Little Bear is right, although the IgG or IgM is supposed to have something to do with how long you've been infected, - or if you still have an active infection etc... I don't think it's concrete.
I'm brain fogging at the moment & can't remember which is which... I'm sure someone will come a long who can think straight ( ha ha) ...
Eaither way, it's still impossible to tell from testing ( even if u do luck out & test positive) exactly how long you've been infected. At least that's what I've been told by my llmd...
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Post by Admin/ Traveler on Nov 9, 2017 19:00:00 GMT
No promises on being able to think straight - but I've been talking about this for so long that it's deep in my memory by now! LOL!
IgM is the first response - or so it was thought to be based on how the immune system works with other infections - but Lyme doesn't play by those rules, so it doesn't work that way.
IgM IS the first response, but it happens every time the immune system 'wakes up' again and recognizes the need for it to act. This can happen in both acute and chronic stages of Lyme.
IgG response are those that take longer for the immune system to make - the bacteria has been in the system for a while, so it's almost always connected to a chronic Lyme infection - although that may change too, Who knows with Lyme? It's a sneaky little devil of a bacteria, and doesn't play by the rules most of the time.
Basically, the only way to know how long a person has been infected is to know when symptoms started. I traced mine back to 7 years old - maybe younger as my Mom informed me. But - that doesn't even work for a lot of people, because we can get the bite and be infected without serious enough symptoms for us to consider that we are actually sick for a while before some stress enters our life and we succumb to the effects of these infections.
In other words - no one knows for sure without an EM rash, which less than half of those with a CDC positive test see.
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Post by girlie on Nov 9, 2017 19:38:35 GMT
No promises on being able to think straight - but I've been talking about this for so long that it's deep in my memory by now! LOL! IgM is the first response - or so it was thought to be based on how the immune system works with other infections - but Lyme doesn't play by those rules, so it doesn't work that way. IgM IS the first response, but it happens every time the immune system 'wakes up' again and recognizes the need for it to act. This can happen in both acute and chronic stages of Lyme. IgG response are those that take longer for the immune system to make - the bacteria has been in the system for a while, so it's almost always connected to a chronic Lyme infection - although that may change too, Who knows with Lyme? It's a sneaky little devil of a bacteria, and doesn't play by the rules most of the time. Basically, the only way to know how long a person has been infected is to know when symptoms started. I traced mine back to 7 years old - maybe younger as my Mom informed me. But - that doesn't even work for a lot of people, because we can get the bite and be infected without serious enough symptoms for us to consider that we are actually sick for a while before some stress enters our life and we succumb to the effects of these infections. In other words - no one knows for sure without an EM rash, which less than half of those with a CDC positive test see. ^^^^^^ What she said.
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Post by Admin/ Traveler on Nov 9, 2017 20:41:53 GMT
Ha ha ha!!! Thanks for the conformation, Girlie!!!
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Post by acres on Nov 10, 2017 5:05:26 GMT
Wow....Another education for me today... Thank you everyone !!!!!
I am going to treat with the herbs and pray and have a positive attitude.... Scott
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Post by alyeska on Nov 10, 2017 5:57:44 GMT
Wow....Another education for me today... Thank you everyone !!!!!
I am going to treat with the herbs and pray and have a positive attitude.... Scott You had the bullseye years ago though, right? I can't remember where you posted that, but I remember it (I think.) That pretty much screams Lyme along with your symptoms. Right?
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Post by Admin/ Traveler on Nov 10, 2017 21:02:43 GMT
Wow....Another education for me today... Thank you everyone !!!!!
I am going to treat with the herbs and pray and have a positive attitude.... Scott You had the bullseye years ago though, right? I can't remember where you posted that, but I remember it (I think.) That pretty much screams Lyme along with your symptoms. Right? I believe I read the same thing for Acres - bulls eye a while ago, and symptoms - which we know means Lyme despite what any test or doctor says. Hang in there, Acres!! You have a great group here to vent to, commiserate with and to lean on!!!
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