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Post by girlie on Dec 27, 2017 1:05:03 GMT
Thanks Girlie. From the research I've done it appears larger doses are recommended for treatment, but good to know about the dosage for Poly rheum. It could certainly be from Bartonella and I remember from Buhner's Bart book him saying it can cause vasculitis. Also, apparently Q Fever and mycotoxin issues can cause it too, as can heavy antibiotic use, like I've just been on. So, it is a bit of a cr*p shoot cause wise for me right now. I just got off the phone with a vascular surgeon's office as my PCP has referred me and we're trying to schedule something asap. I've been throwing every anti-inflammatory I have in the house at it since I took the steroids and while the blood vessels are still relatively pronounced, the pain is mostly gone right now except for slight discomfort in the corner of my right eye and occasional twinges of pain in my left temple. I've requested consultations with herbalists for alternative treatment of this if I can't take steroids. The decisions we have to make are not easy, hey? I am constantly doing the "Should I? or should i NOT?" Oh great, heavy antibiotic use can cause the Giant Cell Arteritis?
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Post by MisterMike on Dec 27, 2017 12:49:04 GMT
Girlie - I wouldn't be too concerned about it unless you've been having lots of other head issues. I think if it does turn out I have this that I was sort of the perfect storm for it.
Will keep you guys in the loop as I learn more, which will hopefully be this week or next. Thanks for your support - much appreciated!
On the good news front got my TGF-B1 results and it has dropped from 8600 to 5357, which is good. Still too high, but I'll take it!
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Post by Admin/ Traveler on Dec 27, 2017 17:01:13 GMT
On the good news front got my TGF-B1 results and it has dropped from 8600 to 5357, which is good. Still too high, but I'll take it! Good news, Mr Mike!!! Congratulations on that!!!
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Post by MisterMike on Dec 28, 2017 0:23:13 GMT
Thanks Trav!
Also, I wanted to share with folks some information I received from my herbalist today about possible ways to help with temporal arteritis in hope it might be helpful to others.
"If it were me I would use bioflavanoids to strengthen the vascular system and reduce inflammation. quercetin, bromelein and lutein are great. you can get them in a combination with a product called Neuroprotek as directed on the bottle. Hawthorn berry is also a bioflavanoid. average dose is 500 mg 3 x daily."
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Post by girlie on Dec 28, 2017 8:31:20 GMT
Girlie - I wouldn't be too concerned about it unless you've been having lots of other head issues. I think if it does turn out I have this that I was sort of the perfect storm for it. Will keep you guys in the loop as I learn more, which will hopefully be this week or next. Thanks for your support - much appreciated! On the good news front got my TGF-B1 results and it has dropped from 8600 to 5357, which is good. Still too high, but I'll take it! I know, I know,Mike. This dang disease has made me concerned about every thing. Seriously...I read something...and "Oh?? ..hmmm...maybe?" lol the TGF-B1 test results - they are heading in the right direction....YAY!
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Post by Admin/ Traveler on Dec 28, 2017 16:39:48 GMT
Thanks for sharing that information, Mr Mike!!! We never know who might next need that kind of help!!
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