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Post by Admin/ Traveler on Nov 29, 2017 18:48:11 GMT
I have a lot of trouble with those very vivid bad dreams too. I have for most of my life, actually, but it got bad as stress on my body got worse. Each time I was pregnant, I would have these horrid dreams about car accidents and kids being in those cars - and I dream in full color as well. I was afraid to sleep for a while when I was pregnant with my daughter, the oldest, but the third pregnancy. Now, I have to say that my dreams are only little snippets, and they are more weird than disturbing. With only remembering snippets, none of my dreams make any sense - last night all I recall was a discussion with hubby about eating eggs. LOL. The night before, I remember something about my dog and his meds. I know I don't get into REM sleep enough (due to my adrenal & thyroid issues - not to mention how these infections mess with that), and that's likely why I don't dream so much. I'm hoping the fact that I have snippets of dreams now means that I'm getting closer - don't tell me if it doesn't mean that though (LOL) I need to be able to hope that I'll be able to get into REM sleep again!! (rolf) Hi Traveler!-
Thank you for you response!
WOW! Your dreams sound horrible.
I also dream in full color, I have from a very young age.
Oh, that must have been a very important discussion about eating eggs! LOL!!! I wonder what the meaning of this dream would be? Most of my dreams are too weird to have any meaning to them.
I also hope that you get REM sleep again!
Thank you, LB!! My sleep is improving (even if it's slowly enough to bother a sloth!)as I get my thyroid and adrenals back to their normals! One very small step at a time, but it's working! LOL, yeah that egg dream was just weird! LOL!!! I usually only remember snippets of some conversation that happened in my dream at this point, but once in a while something really odd sticks with me, like a conversation about eggs! LOL! I hope that you begin to get better sleep soon too!!!
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Post by alyeska on Nov 30, 2017 1:02:08 GMT
Hi casa11!-
Thank you for your response! Thank you for the hugs!
I get that feeling a lot. When it feels like you are paralyzed. I get it mostly when I wake up from a long nap. It takes me anywhere from 30 minutes to 1 hour before I have enough energy to move. I know that I'm not paralyzed, but my fatigue is so overwhelming.
It does feel like my body shut down, just like you said. I remember my last day of work (this was before I knew I had Lyme). My body and brain just shut down. I was no longer able to keep functioning.
I am so happy to hear that your dreams are good dreams. I have had some very bad vivid dreams through my treatments. Sometimes I woke myself up because I was sobbing and crying. I don't know why I can't ever have happy dreams, like that I won the lottery or I am on vacation in Hawaii. That would be soooo nice! LOL!
No worries about the quoting thing...... it's all good. I was able to read your post.
Thank You!
I just woke up from a dream sobbing today. It was about my favorite dog dying. He died years ago, but the dream was so vivid that it was like it was just happening. I have such a difficult time sleeping at night, and then I have to get up at 6:00. If I'm able to go back to sleep once they're off to school an hour or so later, I usually get a couple of hours of really good sleep. That's usually when. I dream. If I don't do that, my body starts to crash around 6:00 pm, and then I'm no good for helping with homework or driving kids anywhere. Thankfully my husband can usually step in for stuff like this, but I still feel inadequate when I can't do "normal" mom things. I would love, love, love to get 8 hours in a row every night.
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Post by Admin/ Traveler on Nov 30, 2017 1:28:32 GMT
I'm so sorry about your bad dream, Alyeska!
Is there any way for you to nap later in the day? Or, what I do, is a 'cat nap'. I don't lay down in my bed, but on a couch out where others are moving around so I don't go to sleep very soundly. I set an alarm (or I wouldn't be able to completely relax) for 20 -30 minutes, then clear my mind and work on relaxing my body for the full 20 or 30 minutes. It took a few tries to get to a place where it actually started helping a lot, but it does work well for me.
I'm only just now to the point where I can sleep at least 7 hours every night. I got down to where I was only sleeping for an hour or two, and it was a super light sleep - I know you all know which one I'm talking about, where you hear and understand every noise in the house. All. Night. Long.!!!!
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Post by Little Bear (LB) on Nov 30, 2017 18:08:26 GMT
Hi alyeska!-
I am sorry to hear about your dream.
Rest when you can. I would also love to be able to sleep for 8 hours at night and wake up well rested.
Please don't feel bad that you can't do the "normal" mom things right now. You are sick and your body is trying to fight this infection. You have done an outstanding job of finding other ways that you and your family can spend fun family time together.
(((HUGS!)))
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Post by Admin/ Traveler on Nov 30, 2017 21:25:30 GMT
I agree with Little Bear - you have done a wonderful job at finding other things that the entire family can be doing together!!! While I do have some trouble relating to others that have enjoyed a 'full' life before Lyme (remember, I've had this all my life, so I never had that 'full' life), I have found that I can sympathize with people no matter what they are going through - and I use that. I ran across this story a little while ago, and I do like it, as it's the closest to describing my already compromised life when I realized (before the 'official' diagnosis) - and the relationship I developed with my kids and my current hubby. It may be something that will help you realize you are soooo much more than a mom with Lyme, no matter how much you feel compromised! The Mighty - chronic Lyme disease, feeling guilt To add to that, I would love to relay a story in my own life as well. I always worried that I wasn't able to provide enough for my 2 kids. I was a single parent, and then I was married, but to an abusive man - and yet, since I couldn't work due to Lyme and company, I had no way out since my own family disowned me. Anyway, I was always worried about what my kids were missing out on because I simply couldn't keep up. By the time the youngest was 18 and going off to college, it was completely overwhelming when I thought of my limitations and not being able to always travel to their college to be there for different important events. So, one day, when they were both home for a long weekend from college, I decided the least I could do was apologize for not being the Mom I wanted to be. Boy, was I surprised at the response I got! I was crying, my kids were crying (mainly because I was!) and we talked, openly. I apologized, and they corrected me. I was the best Mom they could have ever hoped for!! Why? Because even though I couldn't be active with them, I did make sure that I would always talk to them, find out what was going on in their lives, explain most anything I could to them about what I was going through (or anything else they asked about). The thing they appreciated from me the most? The time I made for just them. It didn't matter to them that I had so much trouble with word finding that it was very difficult and frustrating to me to even attempt a conversation - it was the fact that I was willing to struggle through that to try to talk to them. It didn't matter that I wasn't out doing and going with them, because they knew I would be right there, waiting to hear all about it. It didn't matter to them that they had to help around the house a lot more than most kids - it mattered to them that I made sure they had learned enough to be independent once they moved out. As Mom's, we want to be all and do all with our kids. What do our kids really need though? A parent that's there and available (according to my kids!). Hang in there!! ::hugs::
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Post by alyeska on Dec 1, 2017 4:27:15 GMT
All of you are so awesome. These teen years are tough! My 17 year old is especially trying, as most of you know. My husband and I are trying to get him to be more responsible and work full time since he's not doing anything else, and I got the "Mom doesn't work," comment. I try to be cheerful around the kids, and I go to my room when I'm really feeling ill. I don't want to worry them, so I hide a lot of what I'm going through. Doctor's appointments and treatments are always scheduled while they're at school, and I try to be awake when they get up for school and when they come home.
I don't want to scare them, but I honestly am just trying to survive this. I want to be here for them. My mother got breast cancer when I was in grad school, and that was terrifying even though I was technically an adult. She survived it, but for a while we didn't know if she would. I don't want my kids to worry like that. Still, the "Mom doesn't work," comment really hurt. Mostly that particular child just sees me sitting on the couch because he's either sleeping or gone. I really, really wish my husband would have said something at that point, but he either feels the same way or doesn't think it's worth the argument. Sometimes I can't tell. Uuuugh.
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Post by Admin/ Traveler on Dec 1, 2017 20:13:38 GMT
All of you are so awesome. These teen years are tough! My 17 year old is especially trying, as most of you know. My husband and I are trying to get him to be more responsible and work full time since he's not doing anything else, and I got the "Mom doesn't work," comment. I try to be cheerful around the kids, and I go to my room when I'm really feeling ill. I don't want to worry them, so I hide a lot of what I'm going through. Doctor's appointments and treatments are always scheduled while they're at school, and I try to be awake when they get up for school and when they come home. I don't want to scare them, but I honestly am just trying to survive this. I want to be here for them. My mother got breast cancer when I was in grad school, and that was terrifying even though I was technically an adult. She survived it, but for a while we didn't know if she would. I don't want my kids to worry like that. Still, the "Mom doesn't work," comment really hurt. Mostly that particular child just sees me sitting on the couch because he's either sleeping or gone. I really, really wish my husband would have said something at that point, but he either feels the same way or doesn't think it's worth the argument. Sometimes I can't tell. Uuuugh. I'm so very sorry, Alyeska! Yes, those teenage years can be very difficult...for the parents! I had a different attitude about what my kids saw with regards to me being sick. Not only did I expect them to get sick at some point (remember, I had no idea what I had until they were adults), but I knew that there was a good possibility that they would themselves someday have a chronic illness - and wanted them to see that it's not the end of the world - things just would have to possibly change. That was a very unfair comment about you not working - but you still have a very good reason to not work - I'm assuming your 17 yr old isn't sick? I've always told my kids that they could live at home as long as they needed to, or return to live at home again if needed - but they would be required to work, or be in school. We've had one son (hubby's son) return home (after rehab) and he got a job in a week. That's what I was hoping would happen! He's moved on now, has his own place and still has that job too! YAY! Hang in there!!!
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Post by girlie on Dec 2, 2017 8:51:31 GMT
All of you are so awesome. These teen years are tough! My 17 year old is especially trying, as most of you know. My husband and I are trying to get him to be more responsible and work full time since he's not doing anything else, and I got the "Mom doesn't work," comment. I try to be cheerful around the kids, and I go to my room when I'm really feeling ill. I don't want to worry them, so I hide a lot of what I'm going through. Doctor's appointments and treatments are always scheduled while they're at school, and I try to be awake when they get up for school and when they come home. I don't want to scare them, but I honestly am just trying to survive this. I want to be here for them. My mother got breast cancer when I was in grad school, and that was terrifying even though I was technically an adult. She survived it, but for a while we didn't know if she would. I don't want my kids to worry like that. Still, the "Mom doesn't work," comment really hurt. Mostly that particular child just sees me sitting on the couch because he's either sleeping or gone. I really, really wish my husband would have said something at that point, but he either feels the same way or doesn't think it's worth the argument. Sometimes I can't tell. Uuuugh. My son was 20 when I got sick. He moved out on his own about 2 months later. (not because I was sick... ) My symptoms got much worse after that and I'm glad he wasn't home. I manage to pull it together when he comes home for a visit. We've always been very close and I know he'd worry if he knew how horrible I feel. I'm now just starting to share with my friends the 'gory details' of my dark days ...now that I'm doing better. Oh, I just saw at the top of the page the subject is : Insomnia. LOL...I guess I'm off topic.
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Post by Admin/ Traveler on Dec 2, 2017 20:04:39 GMT
LOL, Girlie! As you know, topics seem to change in midstream with Lyme forums! The thread may start out as one thing, but we can cover a whole lot of ground by the end of a thread! LOL!
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Post by girlie on Dec 3, 2017 5:03:22 GMT
I don't sleep like I used to. (Thought I should post ABOUT insomnia - since that is the subject)
I used to be a wonderful sleeper. My husband was jealous of my skill.
I could nap almost anywhere / anytime.
Now ? Fagettabout it!
Sleep changed since Lyme because of a few reasons:
1) I had a period of time when I was having to ice my back and arm every few hours due to nerve pain that woke me up.
2) that was followed by a period of time when I would wake ever few hours in the night in a panic gasping for air.
Now I sleep better - but not like I used to. I think there's some PTSD going on that's triggered when I get into bed.
Sigh
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Post by alyeska on Dec 10, 2017 17:37:39 GMT
All of you are so awesome. These teen years are tough! My 17 year old is especially trying, as most of you know. My husband and I are trying to get him to be more responsible and work full time since he's not doing anything else, and I got the "Mom doesn't work," comment. I try to be cheerful around the kids, and I go to my room when I'm really feeling ill. I don't want to worry them, so I hide a lot of what I'm going through. Doctor's appointments and treatments are always scheduled while they're at school, and I try to be awake when they get up for school and when they come home. I don't want to scare them, but I honestly am just trying to survive this. I want to be here for them. My mother got breast cancer when I was in grad school, and that was terrifying even though I was technically an adult. She survived it, but for a while we didn't know if she would. I don't want my kids to worry like that. Still, the "Mom doesn't work," comment really hurt. Mostly that particular child just sees me sitting on the couch because he's either sleeping or gone. I really, really wish my husband would have said something at that point, but he either feels the same way or doesn't think it's worth the argument. Sometimes I can't tell. Uuuugh. I'm so very sorry, Alyeska! Yes, those teenage years can be very difficult...for the parents! I had a different attitude about what my kids saw with regards to me being sick. Not only did I expect them to get sick at some point (remember, I had no idea what I had until they were adults), but I knew that there was a good possibility that they would themselves someday have a chronic illness - and wanted them to see that it's not the end of the world - things just would have to possibly change. That was a very unfair comment about you not working - but you still have a very good reason to not work - I'm assuming your 17 yr old isn't sick? I've always told my kids that they could live at home as long as they needed to, or return to live at home again if needed - but they would be required to work, or be in school. We've had one son (hubby's son) return home (after rehab) and he got a job in a week. That's what I was hoping would happen! He's moved on now, has his own place and still has that job too! YAY! Hang in there!!! Thanks for the positive thoughts, Traveler. None of my kids are sick (yet.) I'm hoping I contracted this when we lived in DC and went to the Shenandoah all of the time, and they were all born by then. My doc suspects Lyme might be passed by mosquitoes, and they love me more than anyone else in the family, so I hope no one else has been exposed. I do suspect that my husband has it but that his symptoms aren't as bad since he has such a strong immune system.
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Post by alyeska on Dec 10, 2017 17:41:56 GMT
All of you are so awesome. These teen years are tough! My 17 year old is especially trying, as most of you know. My husband and I are trying to get him to be more responsible and work full time since he's not doing anything else, and I got the "Mom doesn't work," comment. I try to be cheerful around the kids, and I go to my room when I'm really feeling ill. I don't want to worry them, so I hide a lot of what I'm going through. Doctor's appointments and treatments are always scheduled while they're at school, and I try to be awake when they get up for school and when they come home. I don't want to scare them, but I honestly am just trying to survive this. I want to be here for them. My mother got breast cancer when I was in grad school, and that was terrifying even though I was technically an adult. She survived it, but for a while we didn't know if she would. I don't want my kids to worry like that. Still, the "Mom doesn't work," comment really hurt. Mostly that particular child just sees me sitting on the couch because he's either sleeping or gone. I really, really wish my husband would have said something at that point, but he either feels the same way or doesn't think it's worth the argument. Sometimes I can't tell. Uuuugh. My son was 20 when I got sick. He moved out on his own about 2 months later. (not because I was sick... ) My symptoms got much worse after that and I'm glad he wasn't home. I manage to pull it together when he comes home for a visit. We've always been very close and I know he'd worry if he knew how horrible I feel. I'm now just starting to share with my friends the 'gory details' of my dark days ...now that I'm doing better. Oh, I just saw at the top of the page the subject is : Insomnia. LOL...I guess I'm off topic. Thanks for all of your comments, Girlie! I appreciate them no matter what the thread topic is! we actually went to Chicago last weekend as a family, and I survived walking AND stairs. However, the second night I didn't sleep at all... that happens frequently when I'm over stimulated. Thankfully my husband was the one driving home, though I read a book to everybody the entire way home! I didn't really get a good night's sleep until two nights later, but I crashed HARD and actually got about 9 hours of sleep that night. That's the first time that's happened in awhile! It was glorious!
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Post by Admin/ Traveler on Dec 10, 2017 18:22:01 GMT
YAY for sleeping good and long!!!!! I LOVE it when I can really sleep good, but it's still periodic for me. Oh, one day.....one day.
And actually, it's been proven scientifically that at least 2 species of mosquitoes (and deerflies!)have the ability to not only carry these infections, but to pass them on to people. I don't know why they stopped looking after they found those species that do carry these infections though, really doesn't make any sense - "Okay, we found two other insects pass these infections, that's good enough, right?" Sheesh!! what in the world were they thinking??? I know - they weren't!!!!
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Post by alyeska on Dec 11, 2017 5:45:14 GMT
YAY for sleeping good and long!!!!! I LOVE it when I can really sleep good, but it's still periodic for me. Oh, one day.....one day. And actually, it's been proven scientifically that at least 2 species of mosquitoes (and deerflies!)have the ability to not only carry these infections, but to pass them on to people. I don't know why they stopped looking after they found those species that do carry these infections though, really doesn't make any sense - "Okay, we found two other insects pass these infections, that's good enough, right?" Sheesh!! what in the world were they thinking??? I know - they weren't!!!! Oh, Traveler, I hate to ask you this. You spend so much time answering all of our questions. We must seem like annoying little students to you! Would you please post a link to info about the other insects so I can send it to my family members? We're all big into hiking and camping, and some of my siblings even live right in the mountains and woods. I'd really love to be able to pass this info on to them to make sure they're covering up and using insect repellant. I wouldn't wish this disease on my worst enemy, so I certainly hope no one else in my family gets it!
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Post by Admin/ Traveler on Dec 11, 2017 18:36:36 GMT
YAY for sleeping good and long!!!!! I LOVE it when I can really sleep good, but it's still periodic for me. Oh, one day.....one day. And actually, it's been proven scientifically that at least 2 species of mosquitoes (and deerflies!)have the ability to not only carry these infections, but to pass them on to people. I don't know why they stopped looking after they found those species that do carry these infections though, really doesn't make any sense - "Okay, we found two other insects pass these infections, that's good enough, right?" Sheesh!! what in the world were they thinking??? I know - they weren't!!!! Oh, Traveler, I hate to ask you this. You spend so much time answering all of our questions. We must seem like annoying little students to you! Would you please post a link to info about the other insects so I can send it to my family members? We're all big into hiking and camping, and some of my siblings even live right in the mountains and woods. I'd really love to be able to pass this info on to them to make sure they're covering up and using insect repellant. I wouldn't wish this disease on my worst enemy, so I certainly hope no one else in my family gets it! Oh good grief!! No, never!!! I really appreciate the fact that I can share information with you all! It helps me feel like I'm doing something to help others stuck in this situation. I made the choice to be here, helping as much as I could at any given point, on a one-on-one basis rather than fight at the national level. Here are some of the links showing the different insects they have tested for carrying these diseases - again, they did NOT test all that many (makes no sense!): CDC - Lyme transmission/insectsAnd this is the study that most others quote. I'll post the section that shows mosquitoes being infected and highlight the important parts (for those that struggle with the scientific wording of it all) - oh, and a head's up - this is a PDF!! American Society for Microbiology Ticks and Biting Insects Infected with the Etiologic Agent of Lyme Disease ,Borrelia burgdorferi To determine whether mosquitoes could transmit B. burgdorferi, field-caught blood-seeking females of A. canadensis(mosquito - see #1) and A. stimulans (mosqito - see #2) were allowed to feed on uninfected hamters in the laboratory. Five groups of 113 A.canadensis females were each placed with five separate hamsters(16 to 35 mosquitoes per group),while two groups of 43 A.stimuans females(15 and 28 per group) were placed with two other hamsters. Of these, 71 A.canadensis and 30 A. stimulans ingested partial or complete bloodmeals. B.burgdorferi was detected in the head tissues of nine and two blood-fed specimens, respectively. At least one infected mosquito had fed partially or completely from each of the exposed hamsters. No isolations were made from the spleens or kidneys of seven hamsters fed upon by mosquitoes or from four others held as negative controls. H owever, B.burgdorferi was recovered from the two hamsters that had been inoculated with BSK medium containing these spirochetes. In addition, one of five hamsters fed upon by A. canadensis had antibodies to B. burgdorferi at a titer of 1:32. An infected mosquito ingested blood from this hamster, and the antibody titer was reproducible. The remaining hamsters exposed to mosquitoes or held as negative controls had no antibodies. Those inoculated with spirochetes had antibody titers of 1:64 or 1:256. Fifty-seven females of T. nigrovittatus (horsefly - see #3) ingested infected blood from membrane feeding devices. Of these, 28 had living spirochetes in their heads(including anterior digestive tract tissues). Duplicate preparations were positive by IFA staining. Although 26 infected females were examined within 24 hrs after feeding, two females harbored living spirochetes for 2 to 3 days after ingesting infected blood. In IFA tests of 15 females that ingested uninfected blood in the laboratory and of 66 host-seeking T. nigrovittatus collected in Milford, no spirochetes were detected. **Now, remember, they are using the same tests we are using - so they are NOT very sensitive!!!! That means that many infections get missed due to poor sensitivity of the testing methods. (1) Aedes canadensis(2) O. stimulans/ A.Stimulans(3) T. nigrovittatus I nearly forgot to add the site to go to in order to find how to protect yourself!!! See? I got all excited to share information again!! LOL! The best information we have available is on ILADS: ILADS top ten tips to prevent chronic Lyme disease
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Post by alyeska on Dec 12, 2017 2:18:56 GMT
Oh, Traveler, I hate to ask you this. You spend so much time answering all of our questions. We must seem like annoying little students to you! Would you please post a link to info about the other insects so I can send it to my family members? We're all big into hiking and camping, and some of my siblings even live right in the mountains and woods. I'd really love to be able to pass this info on to them to make sure they're covering up and using insect repellant. I wouldn't wish this disease on my worst enemy, so I certainly hope no one else in my family gets it! Oh good grief!! No, never!!! I really appreciate the fact that I can share information with you all! It helps me feel like I'm doing something to help others stuck in this situation. I made the choice to be here, helping as much as I could at any given point, on a one-on-one basis rather than fight at the national level. Here are some of the links showing the different insects they have tested for carrying these diseases - again, they did NOT test all that many (makes no sense!): CDC - Lyme transmission/insectsAnd this is the study that most others quote. I'll post the section that shows mosquitoes being infected and highlight the important parts (for those that struggle with the scientific wording of it all) - oh, and a head's up - this is a PDF!! American Society for Microbiology Ticks and Biting Insects Infected with the Etiologic Agent of Lyme Disease ,Borrelia burgdorferi To determine whether mosquitoes could transmit B. burgdorferi, field-caught blood-seeking females of A. canadensis(mosquito - see #1) and A. stimulans (mosqito - see #2) were allowed to feed on uninfected hamters in the laboratory. Five groups of 113 A.canadensis females were each placed with five separate hamsters(16 to 35 mosquitoes per group),while two groups of 43 A.stimuans females(15 and 28 per group) were placed with two other hamsters. Of these, 71 A.canadensis and 30 A. stimulans ingested partial or complete bloodmeals. B.burgdorferi was detected in the head tissues of nine and two blood-fed specimens, respectively. At least one infected mosquito had fed partially or completely from each of the exposed hamsters. No isolations were made from the spleens or kidneys of seven hamsters fed upon by mosquitoes or from four others held as negative controls. H owever, B.burgdorferi was recovered from the two hamsters that had been inoculated with BSK medium containing these spirochetes. In addition, one of five hamsters fed upon by A. canadensis had antibodies to B. burgdorferi at a titer of 1:32. An infected mosquito ingested blood from this hamster, and the antibody titer was reproducible. The remaining hamsters exposed to mosquitoes or held as negative controls had no antibodies. Those inoculated with spirochetes had antibody titers of 1:64 or 1:256. Fifty-seven females of T. nigrovittatus (horsefly - see #3) ingested infected blood from membrane feeding devices. Of these, 28 had living spirochetes in their heads(including anterior digestive tract tissues). Duplicate preparations were positive by IFA staining. Although 26 infected females were examined within 24 hrs after feeding, two females harbored living spirochetes for 2 to 3 days after ingesting infected blood. In IFA tests of 15 females that ingested uninfected blood in the laboratory and of 66 host-seeking T. nigrovittatus collected in Milford, no spirochetes were detected. **Now, remember, they are using the same tests we are using - so they are NOT very sensitive!!!! That means that many infections get missed due to poor sensitivity of the testing methods. (1) Aedes canadensis(2) O. stimulans/ A.Stimulans(3) T. nigrovittatus I nearly forgot to add the site to go to in order to find how to protect yourself!!! See? I got all excited to share information again!! LOL! The best information we have available is on ILADS: ILADS top ten tips to prevent chronic Lyme diseaseI found this too. sponauglewellness.com/lyme-study-how-borrelia-bacteria-is-transmitted-from-mosquitoes-to-humans/. I wish there was more conclusive evidence. I can't believe there haven't been more studies. With so many more people being diagnosed every year, it doesn't make sense that they don't know more about it. Obviously there is the entire political issue with the crooked doctors, but word is definitely getting out. Everyone I've casually mentioned it to seems to know about it now and tells me horror stories, so people are hearing about it. I'm praying hard.
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